Comments for Polymyalgia Rheumatica

Comment on mystery diagnosis, pleas help us. by TheRyanslions

TheRyanslions — Wed, 16 May 2012 21:38:01 +0000

might be tm or dystonia,

Comment on mystery diagnosis, pleas help us. by jscudiero

jscudiero — Wed, 16 May 2012 21:36:35 +0000

Disclaimer: I’m not a doctor, just a frequent flier patient with a long history of my own sometimes-misdiagnosed medical problems. Some possibilities to look into: tardive dystonia, which can be caused by some medications, migralepsy, a rare syndrome where migraines cause seizures, or, what I consider the most likely of my list, autoimmune epilepsy. Having 1 autoimmune disease makes getting another more likely, so I’d look into autoimmune causes first. This could be a type of seizure.

Comment on mystery diagnosis, pleas help us. by jscudiero

jscudiero — Wed, 16 May 2012 21:27:02 +0000

I should mention that a normal EEG does not automatically rule out a seizure; EEGs can be unreliable, especially if the cause of the seizure is chronic or located deep within the brain. Also, one normal EEG in the midst of an attack does not rule out seizure. If the docs ruled out seizure disorders based on one normal EEG during an attack, I would fire them and find new doctors. (What do you call the guy who graduated last in his med school class? Doctor!)

Comment on mystery diagnosis, pleas help us. by jscudiero

jscudiero — Wed, 16 May 2012 21:10:59 +0000

I stand corrected – it does indeed look like Stiff Person Syndrome, or Stiff Man Syndrome (if they’re absolutely, positively certain these aren’t seizures).

Comment on mystery diagnosis, pleas help us. by boekleahcim

boekleahcim — Wed, 16 May 2012 20:36:41 +0000

i’m very sorry for what is happening to you.

a friend of mine has the same spasmic attacks. but she never wants to talk about it. the only thing i know is that she had for many years glandular fever (pfeiffer). perhaps the deseases are related to each other.

good luck !!!

Comment on mystery diagnosis, pleas help us. by 66godsgirl

66godsgirl — Wed, 16 May 2012 19:41:34 +0000

my God, I suffer from chronic pain s.l.e. lupus and fibromyalgia. I thank God for you all, but this happens often and we cant tell them whats going on . im praying for her healing be blessed 66godsgirl

Comment on mystery diagnosis, pleas help us. by tyme4mike

tyme4mike — Wed, 16 May 2012 19:37:47 +0000

Only medical knowledge I have is experience. From what I see physically, she seems healthy in weight, colour, her eye colour suggests no liver issues. Taking a shot here. Viral arthritis maybe. OR I was in hospital with person who was like this lady, arms up like that, stiffness, and ‘out of it’ most of the time. Considered catatonia? One medication that might be considered is neurontin(gabapentin), but I’d get her off abilify. Not that it’s bad, but it’s not for someone who is like this.

Comment on mystery diagnosis, pleas help us. by beanbaggyful

beanbaggyful — Wed, 16 May 2012 19:30:20 +0000

is it tetany?

Comment on mystery diagnosis, pleas help us. by kuwzicat

kuwzicat — Wed, 16 May 2012 18:54:13 +0000

have you looked into food intolerances , they can have many adverse effects on the body , hope she gets well soon God Bless

Comment on mystery diagnosis, pleas help us. by borgme7of9

borgme7of9 — Wed, 16 May 2012 18:34:58 +0000

Hi angelicahelpme how are you doing any better now i would like to no more…